So, I know its been a while since blogging, but I have been really sick lately. Its so very had having an invisible disease that people don't understand. Sometime I feel like I know more then my Neurologists. I attempted to diet over the last 3 months eating about 900 calories a day. Well guess where that got me,Well no where! I lost a little bit of water weight but got no where, so after 3 months I gave in again. Lyrica continues to pile the wight in my body but I have to take it for my fibromyalgia.
I was not going to go there but on top of Narcolepsy I have fibromyalgia,
Chiari Malformation is the root of everything.
I was not going to go there but on top of Narcolepsy I have fibromyalgia,
Cervical OPLL - Ossification of Posterior Longitudinal Ligament, degenitive disk diease,
sleep apneia and a Chiari Malformation. Now my family and everyone else I come in contact with
except of course all the NC doctors, think the you must be at least 3 to 5 mm below the foramen magnum to be diagnosed with a chari.
Chiari Malformation is the root of everything. 
However Doctors around the world are now seeing that there are different classifications for a Chari. So why is it I cant find a doctor with this knowledge? Instead they all look at me like I am crazy and just continue to treat my Narcolepsy I have fibromyalgia,
Cervical OPLL - Ossification of Posterior Longitudinal Ligament,
degenitive disk disease, and sleep apneia.
It's been so frustrating, sometimes I am not even sure how i am able to deal with all of it.
I guess the only reason I am still going is because i have a great family who has been
there for me through all of this.
I recently found a support group which I am joining on Oct 4th 2012. I cant wait to meet other people who know what its like to live day to day this way. Its hard being alone.
